Everything else, Grief

A Grief Named Lucille

 

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It comes out of nowhere.

Wait. That isn’t accurate.

It’s there, always. Sometimes it’s hiding, just under the surface. Sometimes it’s shoved down so deep it seems like it’s gone.

Sometimes I forget, just for the briefest of seconds, when I encounter something that really strikes my soul in some way, like a string of powerful song lyrics. I pause and absorb that small fraction of time; peace settles within, and I am overwhelmed with the perfection of what is happening around me. Puppies playing, children laughing, snow falling, my husband’s warm hand linked in mine.

I never see it coming, until THWACK! Negan has sneaked up behind me, and Lucille connects to the back of my neck with a force so abrupt and painful I can do little more than collapse on the floor and try to catch my breath. The crushing hopelessness is upon me and I can’t think how to get out from under it.

It’s been a while since I had a full-on anxiety attack. I came close the night before Easter, when we (as is typical for us) were running around getting things at the last minute for the kids’ baskets. Walmart was so crowded, most aisles were impossible to get down. I could feel the familiar signals creeping up on me, and I pulled my husband aside and told him I needed to finish and get out of there. While we finished getting the final few things, I worked really hard to keep my breathing even, to not give in to the panic thrumming in my veins. What I’m finding is I’m okay and I’m okay and I’m okay and I’m okay and then all at once, I am absolutely NOT okay. It doesn’t have to be anything big that sets me off.

Saturday I had a table at a local book event for horror authors. It was inside a busy farmer’s market, but I knew the room we’d be in was off to the side and less crowded, so I figured I’d be fine. And I was. Mostly. Some of the authors in attendance I knew from the previous year at the same event, and it was nice to talk and catch up. Sold books. Had some good talks. Met a couple new friends. During a lull, I was standing at the table next to mine, talking with the artist, flipping through the pages of his albums, checking out prints I wanted to buy. Nothing in particular was going on. I wasn’t being crowded or upset. But all at once, I felt it creeping up my spine. And I was so hot I couldn’t catch my breath. My chest began twitching. Clenching. I hurried back to my seat. Drew my shawl around me. Pulled my hair up inside my hat. My husband went out and bought me a big bottle of water, then sat with his arm around my shoulders until the panic passed. It wasn’t a full-on attack, but still bothersome. For the most part, I had a great day.

But then I overdid just a little. After the event, I went to a store, and then to a busy restaurant for dinner. I did okay while in those places. I was okay, and I was okay, and I was okay, and then about 2:30 a.m., while I was in bed, in the dark, relaxed and dozing –

Dammit. There she was.

Lucille.

At first, I thought, maybe it’s asthma. It could be asthma. The weather has been weird and my lungs can be sensitive. My chest tightened. Yeah. It’s probably asthma.

Please be asthma.

Even as I thought it, I knew it was that freaking bat. At least that time, I was already down. I curled up and burst into sobs. I searched my brain for breathing exercises to do. Thought calming thoughts. Tapped my fingers. Wept until I was all snotty. Caused my husband some alarm. It lasted probably a half an hour before it began to ease.

Occasionally, people will ask me why I keep talking about grief and mental health issues. There are happier things to write about, aren’t there?

Well, sure. Of course there are.

You’re usually so funny! Write something to make people laugh!

That’s true. I do have a knack for humor. I enjoy making people laugh, and often write that sort of thing.

But life isn’t always funny. Sometimes it hurts. Sometimes the pain is so disabling, you struggle just to get up off the floor.

It’s important to talk about those parts of life, too. People need to know they aren’t the only ones struggling with depression or anxiety or grief. They need to know someone out there understands what they are feeling. If there is anything worse than being depressed, anxious, and grieving –

it’s being depressed, anxious, grieving, and completely alone in it.

Sometimes people say I seem to be dwelling on my grief.

“Get over it.”

“It’s been months already.”

“Pretend to be happy, and then you will be.”

I know there is a lot of truth in the idea of focusing on the positives. And I do, truly. Maybe even more than most people do, because I know how awful it is to have family and happiness ripped away in a blink of time. Focus on your joys. Be grateful for what you have. Absolutely.

But, guys, there is an enormous difference between “dwelling” and “acknowledging.”

Forcing yourself to act happy all the time, refusing to acknowledge your grief and pain, that’s some unhealthy shit right there. That agony you shove down deep and refuse to talk about? It’s gobbling you up from the inside out. Dwelling on the past and your hurt, yeah, it’s probably not so good. But taking it out, recognizing it’s there and it’s valid, finding ways to keep getting up every day in spite of it; finding ways to laugh although you ache –

that’s important. Grief and pain, those are experiences that shape us. Change us. Empty and refill us.

So I keep getting up. Keep writing. Keep looking for small joys to hold onto. Keep enjoying those fractions of time that feel like utter perfection.

Even though I know Lucille is going to hit me again. Knock me down. Make me weep.

I keep getting up.

My bones ache. I bleed. I think I can’t do it one more time. It’s not possible.

I keep getting up. Sometimes it might take an hour or a day or a week to get entirely upright.

That’s okay.

Because it’s worth it. I promise, it’s worth it.

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Everything else, Writing

Feast or Famine

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Writing is weird. Sometimes difficult. Often joyous.

But always weird.

My brain seems to function on a feast or famine basis when it comes to writing. Right now, I’m writing and writing and even when I’m not writing… I’m still writing. The story is moving along in my mind, I’m hearing the characters, I know exactly where it’s going and where it’s been and where it will be in another five years.

When I’m in this mode, it feels more like I’m a vessel for the characters in my head and I’m more or less transcribing their story. I’m less the puppet master and more the marionette. I love it. Regardless what time of day I’m able to sit down and write, it’s there, right at my fingertips, ready to roll. But it isn’t always this way. Some days, my brain is dry as a desert. Some days, I spend three hours moving a comma. Some days, I can’t stand to even look at my laptop.

And that’s okay.

Social media can be cool, in the sense that it feels as though it brings us closer to those we admire. I mean, twenty years ago I would never have known what Stephen King thought about the president or that he has a dog he calls the Thing of Evil. I would never have known when Diana Gabaldon had a new grandbaby. But as I pull back more and more on social media, as I unfollow and unfriend more and more writers, I find I’m enjoying the act of writing more and more.

I wondered why that was.

Presumably, following and friending other writers should make me feel surrounded by a community of like-minded artists. Supported. Encouraged.

I haven’t found that to be the case.

As much as I love art, as much as I love words and books and writing, as much as I love seeing the creativity of my friends’ minds coming to life, the more I watch their journeys taking shape –

the more I realize other writers stress me out.

Not all of them, of course. I’ve made some wonderful friends over the last few years. But the ones who post obsessively about writing – I find that stressful.

The ones who constantly post how stressed out writing makes them – I find that stressful.

The ones who constantly want something from me – stressful.

The ones who talk about missing out on milestones in their children’s lives, or their wedding anniversary, or their eighty-year-old mother’s birthday party because they were writing or trying to make a deadline or just couldn’t stop editing –

Man, just the thought of these things stresses me out.

Don’t get me wrong. I love writing. I mean, I love writing. When I’m in that zone, when I’m planning twists, when I’m cracking up at a funny scene I’ve written, it’s the best feeling. It makes me feel whole. It’s my passion, one of my greatest joys.

I don’t want it to become one of my stressors. I’ve done the whole writing full-time gig before. I didn’t enjoy it. I felt like I was supposed to. I began to dread writing. I felt anxious that my bills being paid depended on my ability to write enough words in a day.

I see this in other writers as well. When they talk about writing being so stressful they cry over it. When they are so panicked over a deadline or a cover reveal or getting enough reviews they can’t sleep. They are missing out on life because of the stress writing brings to their life. They’ve lost the joy, the passion, the pure wonder of creating a world and people and events in their brain. I don’t want that. I get asked if I hope to make the NYT bestseller list –

the answer is no.

I get asked if I hope to  be able to live on what I make from writing books –

the answer is no.

I get asked if writing is the most important thing in my life –

the answer is no.

Last week, I attended a funeral visitation for a three-year-old child and her twenty-seven-year-old father.

A three-year-old child.

Listen:

I love to write. I’m sad when I can’t. It hurts – physically hurts me when I can’t.

But there is so much more to life than writing.

This year marks twenty-five years since I married my husband. My marriage is more important than writing.

My youngest baby is about to celebrate his sixteenth birthday. A blink of time ago, he was a chubby-cheeked, toothless baby. My oldest child is nearing the end of her Bachelor’s degree program. My middle two children are finding their balance in life as young adults.

I love to read. I love to write. I love to hold the books I’ve created in my hands.

But I don’t love any of that more than I love my kids.

When other writers say things like, “Nothing is more important to me than writing” –

that stresses me out.

Lately I’ve unfollowed or unfriended the bulk of writers I used to interact with. Not the ones I have developed actual friendships with.

And I mean… not Stephen King. Because, obviously.

There is a lot of pressure on writers and artists in general, I think – a notion that says if you don’t want to be the best, be at the top of the list, have bajillions of reviews and followers, then you just don’t want to succeed hard enough.

Maybe. Maybe not.

I guess that depends on what your personal idea of success happens to be.

I accepted a long, long time ago that my brain works differently than other people’s brains do. What I cannot accept is the idea that if I’m not out to make a million, it’s worthless. If I’m not ignoring my family and making writing my number one priority, it’s worthless. If I’m not stressing myself to the breaking point or making my livelihood reliant on it, it’s worthless.

I’m content with my writing at this point. I have a little band of readers who love what I’m doing, who are invested in my characters and have all my books on their shelves. I love not freelancing anymore. I enjoy not being so constantly stressed over deadlines. I am happier writing this way. I’m not making a million dollars. That’s fine – I never intended to.

My vision of success is to continue to write my weird books to the best of my ability for the foreseeable future. I will do what marketing and promo I’m able to do, and let it rest. I trust that the people who need my books will find them.

What I won’t do is be a martyr for my art. I won’t give up everything else in my life for the sake of writing.

I love to read. I love to write. I love making books.

I also love my family. I love to walk barefoot in the grass, and look up at the stars. I love  to sit still and ferret out the meaning behind song lyrics. I love to listen to the rain. I love to hear my children laugh. I love to crochet. I love to try new things. I love to hear my husband tell me about his hopes and dreams. I love to look back at how far we’ve come and think about how far we’re going to go. I love to daydream.

I love to write, and while some days, it feels like my ideas and ability to write is feast or famine –

I don’t believe my dedication to the craft always needs to be one or the other.

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Bits and Whatnots, Everything else, Grief

One Step Forward. Three Hundred Sixty Four Steps Back.

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People who know me keep asking if I’m feeling better.

I’m never sure how to answer that question.

What exactly is “better?”

Better from grief? From depression? Anxiety? I don’t know. It’s all tangled up in me and I can’t always pull the different emotions apart.

If the question is, Have you gotten over the deaths of your siblings? Then the answer is no, and I never will, so you might as well stop asking.

If the question is, Are you making any progress at all? Then the answer is, Yeah, I think so.

It feels like I am. In really, really, miniscule ways, I’ve made some progress. For a long time, I felt so raw I could barely stand most of my clothes, so it’s been leggings and soft shirts  most of the winter. But the last few weeks, I’ve been able to wear jeans.

Last Thanksgiving, I hosted the family dinner. My niece brought a turkey. It was too heavy to pull out of the oven, so I transferred much of the juice to a big Mason jar. I set it on the windowsill above the kitchen sink. I’ve been looking at that jar for months, disgusted with myself for not taking care of it, but too exhausted and overwhelmed to deal with it. Two weeks ago, I dumped it out and washed it.

Three weeks ago, as I was walking out the front door to take my boys to school, my youngest son said something funny and I heard myself laughing. Like, really laughing out loud. Hard. And I thought to myself, Oh my God, I’m laughing. How long has it been since I laughed last?

My therapist says she’s proud of me. I wonder how I got to a place in my life where it means so much for a therapist to tell me she’s proud of me for doing simple things like leaving my house or washing the dishes.

I’ve gone to dinner at a couple of smallish restaurants without having an anxiety attack. I told the psychiatrist I’ve been seeing about the anxiety attacks that hit when I’m in crowds and she told me to breathe into a paper sack. So that was just phenomenally unhelpful. Glad I’m getting charged nearly $200 for that bit of advice.

Still can’t watch television or read much. I’ve found a few more musicians I can tolerate the sound of, so my playlist has gotten slightly more diverse, but I still listen to the same songs every day. I have no idea what it is about these artists that makes their music tolerable, but for the moment, I’m just glad I can listen to any music at all.

But it feels like in more ways than I’m moving forward in, I’m stumbling back. Anxiety makes me more awkward than usual, and the usual is pretty damn awkward already. I work in a very small office, usually with three other people that I know pretty well. I have my own desk in a room with two other desks, but there’s usually nobody else there when I’m working. So I walked in last Thursday to find a new person had been hired. She seems entirely pleasant, but I was caught off-guard. I couldn’t think of what to do, anxiety had my brain all jumbled up, and even in the best of times, I’m not huge on hugging, especially with people I don’t know. But the new chick is a hugger, so she jumped up to hug me hello and introduce herself. Entirely inadvertently, I jumped backward and flung my hand out like “stop.” Immediately, I attempted to apologize and shook her hand, babbling incoherently about my own inadequacies and anxieties, and generally making the situation even more awkward. Anxiety ballooned this incident in my mind until it was nearly all I could think about. At the end of my shift, as I was walking out, I thought, I need to make this right so it’s not super awkward next week. So I stopped to shake her hand again as I left, and said the most inane thing I probably could have. “Sorry I’m so awkward, but I’m seeing a psychiatrist about it.”

I’m sure that helped matters. First impressions and all that.

My husband surprised me with a night away at a hotel and planned a night at a casino. He said I seemed overwhelmed and needed a break, which was true. The hotel part was awesome but the casino was crowded and smoky and I had to take frequent breaks from the people. I wrote part of my new book out on my phone while my husband played games, so I didn’t have to interact with anyone. The next day was release day for When Knowing Comes, and as I’d decided to go low-key and stress-free as possible, I’d planned a live video in my FB readers group for the event. We came home twenty minutes before the video was to start. My laptop decided to do updates at the last second, which left me in a panic. The FB app on my phone wouldn’t work for no apparent reason. Finally I grabbed my husband’s phone, downloaded FB, and started my live video twenty minutes late, which left me out of breath, anxious, and shaky.

I find I just really need a lot of preparation before I do anything. Time to work up courage. I hate feeling this way. It isn’t what I’m used to and I get frustrated with myself for not being able to get back to “normal.” Which, okay, with me is still pretty weird but even so. I used to be able to roll with the punches when plans changed. I want that part of me back.

Some days, I am anxious all day for no apparent reason. It feels like that sensation when you tip over the top of a rollercoaster hill, all day. All night. And I can’t link it to anything in particular, so I can’t fix the problem and by the time evening comes, all I can think about is going to bed so I can escape that feeling. Going to bed because you’re tired is a very different thing than going to bed because you can’t stand being awake anymore. Either way, though, I wake up over and over and over. I can’t remember what a solid night of sleep feels like.

But on the upside, I’m having less nightmares about my family and pets dying in front of me. So I’ve got that going for me, which is nice.

I’ve pulled back more on social media. I’ve unfollowed or left all the groups I was in except my own readers group. Weekly, I cull more “friends.” I’ll continue paring down until I get to what I feel is a manageable number. I understand it hurts people’s feelings, but right now all I can do is try to take care of my brain the best I can. My focus has narrowed to my household, my mom, my job, and writing.

And speaking of writing.

I’m writing. A lot. For so many months, I couldn’t write anything, and that was painful for me. Now, I can’t seem to stop. I’m nearly finished writing the third Windy Springs book, and my mind races with ideas for the fourth.

A lot of the time I feel like all I’m doing is treading water. But hey, at least I’m not drowning anymore.

One step forward. Three-hundred-sixty-four steps back.

But still, a step forward is a step forward. And even one step is better than none.

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Everything else, Writing

Blocked.

 

 

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Writers block isn’t real.

It’s just an excuse to be lazy.

Real writers write. Every day.

If you’re a writer, you’ve probably heard some version of these statements. I’m not sure what the people offering this non-advice hope to achieve, but personally, I think such words are extraordinarily detrimental.

For one thing, nobody gets to tell an artist how to do their art. Some people naturally create more in certain seasons. Some artists work a day job (or two, or three) and only get to be creative on weekends. Or every third Thursday. Some artists are single parents, and the idea of creating on a daily basis is so laughable as to be fiction.

Beyond these things, though, is the harmful notion that a struggling person just isn’t trying hard enough. There are all sorts of reasons a creator might be blocked. Maybe they’ve been ill. Maybe there’s been a death in their family. A divorce. Maybe the season of life they are in has them caring for elderly parents around the clock. Depression. Anxiety. Insomnia. Maybe there’s no reason other than that they need a break, and their brain is trying to get that message through to them.

Real writers write. That’s true. You’ve got to write something. You don’t need to write every day, unless that’s the way you work. Pressing unrealistic expectations on someone already barely keeping their head above water isn’t helpful. Despite the overwhelming amount of advice suggesting writers are machines, meant to work every day, all day, without regard to physical or mental health or other difficult outside factors –

You know what? We’re not.

We’re just people. And sometimes being a person is hard. Sometimes the difficulties in life kill our creativity. That doesn’t mean it’s gone forever. That doesn’t mean we’re no longer writers. It means we’re human beings who need a break. And that’s okay.

Take it. Rest. Go outside. Deal with the things you need to deal with. Read. Learn something new. Spend time with your family. Your friends. Laugh. Cry. Heal.

And come back to it. Your story isn’t going to run away because you left it alone for a little while.

If you aren’t a writer but you know one, and they’ve shared with you that they are blocked, telling them they are making up excuses or being lazy isn’t helpful. Instead, encourage them. Remind them they deserve rest like anyone else.

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Bits and Whatnots, Everything else, Grief

The Gift of a Song

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On occasion, I’ve experienced things that defy any simple explanation. I don’t understand how they happened, but I’m positive that they did. Cosmic mysteries, I guess, or whatever you want to call them.

My sister loved the song Wagon Wheel by Darius Rucker. If it came on the radio, she’d immediately start  smiling and singing along. When she was on Hospice, her son would sing it to her often. The night she passed, that same son sang Wagon Wheel as she took her final breaths.

We made a CD to play during the funeral viewings and service. Of course, Wagon Wheel was included.

She’d been gone just a little over four years when we learned my brother had cancer. He asked me to help him take his son on a promised trip to Nashville. Within weeks, we’d thrown a fundraiser, gotten time off work, and packed up our Yukon, Nashville bound. My nephew loves country music, and my brother had promised to take him to see the Grand Ole Opry. It took us two days to drive from Michigan to Nashville. My brother was quite ill at that point, and we had to stop often for him to get a drink or to rest. We had purchased tickets ahead of time for the Opry, for the same night we rolled into town. After dropping off our luggage at the hotel, we headed out. We had a wheelchair we’d intended to bring with us, but we couldn’t fit it in the vehicle, not with five adults and all the suitcases and bags. After literally hours of trying to get the chair into the Yukon, we left without it, as time was unfortunately of the essence. When we arrived at the Opry, we realized we had a problem: the parking lot was enormous and crowded. There was no way my brother could walk that distance, so my husband let the four of us out at the gates, and went to find a parking spot. If you’ve ever been to the Opry, you know how beautiful it is. The giant guitars, the plants and flowers, the lights. It’s utterly enchanting. And there is always country music blaring outside to welcome visitors.

It took quite some time for my husband to make it back up to where we were. Tickets in hand, our group entered the gates.

That’s when I heard it. Darius Rucker singing Wagon Wheel. It started playing just as we walked through. I nudged my sister-in-law. “Do you hear that?” I asked her. “It’s Charlotte’s song.” We all kind of stood still for a second, listening. A weird little shiver went up my spine and my eyes watered. How I’d wished she could have been there with us, and out of nowhere came her favorite song.

Which could always be a coincidence. But it meant something to me. It really struck my heart.

The show was fantastic. It felt good to know we had accomplished the biggest goal for the trip. We’d gotten my brother and nephew to the Opry. Anything over and above that was gravy. We hit a lot of touristy spots while we were in town. The wax museum, where my brother posed with his favorite singer, Reba McIntyre. We bought cowboy boots at a western shop. We laughed a lot. One day we drove right into the heart of the city, intent on taking my nephew to the Country Music Hall of Fame. Here in Michigan, I live in a town so small we don’t even get mailboxes. My brother and his family lived a couple of hours north of us, in another small town. You ever see the Uncle Kracker video for Smile? That was filmed in their town. Suffice to say, downtown Nashville was a bit of a shock to our systems. The noise, the crowds, the hella busy streets. First we had to find a rental place to get a wheelchair, which took time. Then we had to locate a parking lot, which was confusing. And by the time we had the wheelchair and had gotten parked, we weren’t sure which direction we were even walking. We went down one sidewalk, backtracked, tried another one. Finally, my husband told us to stop and he took out his iPhone.

“Siri, I need directions to the Country Music Hall of Fame,” he said, loud and clear.

Instead, his phone pulled up YouTube. And without him touching a button, Darius Rucker’s Wagon Wheel came blaring out of his phone.

That time, I did cry. In fact, my insides shook. The five of us stilled on the sidewalk, stunned. Staring at the phone in my husband’s upturned palm.

When the song ended and we looked up to try to figure out where we were, there it was: the Country Music Hall of Fame. Right across the street.

Another coincidence?

It feels like more than that to me. It feels like it was a gift, just for us. Two weeks later, my brother was gone. But the memory of that moment the five of us – or maybe the six of us – stood together on that sidewalk, listening to Wagon Wheel, has been a balm to my soul ever since.

I will treasure that fraction of time forever. Because I was given a precious gift.

The gift of a song.

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Bits and Whatnots, Everything else, Grief

Life in Color

Sometimes forward steps seem so small. It’s imperative to remember that any step forward is still a step forward. It doesn’t matter if that one tiny step has taken you years to make.

Forward is forward.

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Yesterday, I did something I haven’t done in many years. Longer than that, actually. Something I haven’t done since I was about fifteen or sixteen. And I’m a long way past that now – forty-two.

It seems like a tiny thing. A normal thing. Something I imagine most humans do on a regular basis. Let me back up a minute.

When I was a young teen, my sister went to cosmetology school. I went in often to let her practice on my hair and nails. Eventually, she graduated, and after that, anything that was done to my hair took place either in her kitchen or mine. I haven’t been to a salon since then. Not once. Those times when she was cutting or coloring my hair were catch-up moments for us. What’s been going on, what the kids are up to, who she was dating.

Now, my hair isn’t something I spend a whole lot of time on. I wash it, blow dry it, and just leave the Medusa curls as they are. It’s thick, heavy, and generally uncooperative, and it just takes too long to do anything else with it. I’m also not good with keeping up on coloring it, so by the time I get around to it, I’ve got a couple inches of roots grown out. By the time my sister started having pain in her shoulder, it had been months since I’d cut or colored it. Then she wasn’t able to move her arm well enough to hold her scissors. And very shortly after that, we knew it was stage 4 cancer.

After she died, the thought of anyone else touching my hair was so repulsive I couldn’t stand it. For a long time, I did nothing with it. By the year after her death, my hair was such a mess, even I couldn’t stand it any more. The ends were dead and splitting inches up from the bottom, and it was making the curls look more like I’d just stuck my car key in a light socket.

I looked up how to cut my hair in layers on YouTube, and found a tutorial for doing it by putting my hair up in a ponytail and cutting. I did it myself in my bathroom, and when my hair hit the floor I cried because she wasn’t the one cutting it. That first time was rough, but once I figured out how to do it, it wasn’t so bad. Two, maybe three times a year, I’d just pull my wet hair up in a ponytail and lop off a couple of inches. It took me four years before I could let anyone else touch my hair, and even then, it was my daughter.

She’s a cosmetology student at the local community college. Last summer, I sat in my kitchen chair and let her even up the mess I’d made of my hair and then color it. It was funny how similar her hands felt to my sister’s. Quick and confident.

About a month ago, I woke up one morning and decided to cut myself bangs. They turned out all right. I just used regular household scissors. But after that, I felt like I needed a big change. I decided to color my hair purple.

So my daughter made me an appointment, and yesterday I drove to her cosmetology school and spent six hours getting the red out of my hair and the purple and brown put in. It was crowded and noisy, and at times, that was difficult for me to handle. Since my brother’s death, I haven’t been out in public much. Crowds trigger my anxiety attacks. But I made myself sit through it. Even though my daughter is the one who did my hair, it seemed so strange to be in a salon. The experience took me right back to when I was fifteen, sitting in a twirly black chair at my sister’s school.

When it was finally all done, I left the school and drove straight to my church. A friend of ours had passed away and I went to his memorial service. After I parked my car, I checked myself in the rearview and realized I had purple dye smeared on my cheek.

I went in anyway.

Funerals have gotten hard for me. I know most people don’t actually like funerals, but for me, having lost so many family members in a short span of time, it’s difficult for me to fight through flashbacks, and sometimes I have trouble catching my breath. This was the second funeral for me this week. The church was crammed full of people, so for the second time yesterday, I had to force myself to handle being in a crowd without having a panic attack. I made it through the entire service but didn’t stay for the dinner because my personal limits had been reached. Sometimes I just have to say no and either people will understand or they won’t. I can’t control their reactions.

It seems like a small thing – going to get my hair done. But for me, it was a huge, huge step forward. Yesterday was the longest consecutive amount of time I think I’ve spent in a crowd since my brain went to shit about six months ago.

That tells me two things:

  1. This combination of medication is working for me.
  2. Hope is out there. Somewhere.

Grief and its aftermath are such hard things to live through. But I’m doing it.

I’ve said before that intense grief is like suddenly having an enormous hole in your leg. At first, it seems like your life is over – how can you function with a gaping hole in your leg? You can’t walk. You can’t do anything. It’s awful. You need help with everything and it’s unimaginable that you will ever have any semblance of a normal life again.  At some point, though, you realize you can do some of the things you used to do, you just need to do them in a different way. And later, you don’t need as much help. You can go on with your life, though you might need a cane and you’ll always have a limp.

My purple hair is me walking with a limp.

But at least I’m walking.

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Bits and Whatnots, Grief

A Different Sort of Love

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Tomorrow is Valentine’s day, and in the spirit of celebration, I’m going to share a love story with you.

Not that kind of love story.

This one is about the love of a community.

My brother’s wishes were to be cremated. As a family, we decided to use some of his ashes to have jewelry made for each of us as a keepsake. Most of them came in back before Christmas, but my two daughters had ordered blown glass pendants, which took longer to create. They were ordered in early November, and just came in February 3rd. I drove out to the funeral home in our old hometown to pick them up. It was a Friday, and my daughters were ecstatic that they had finally come in.

Last Tuesday, February 6th, I was at work when my cell phone rang. It was my youngest daughter’s number. When I answered the phone, she was wailing, a terrible, strangled cry that broke my heart.

She had lost her necklace. She had come home from school, changed, picked up her pendant – which was still in the box it came in from Crescent Memorial – put it in her pocket and stopped at a local store on her way to her boyfriend’s house to show it off. During the drive, she realized the box was no longer in her pocket, and immediately retraced her steps. She searched the store and the lot, to no avail.

The beautiful blown glass pendant – ordered in blue and green, because my brother loved nature – the last link she had to her beloved uncle, was gone. Her heart was shattered.

I made a public post on my Facebook page with a picture of the pendant and a plea to help us find it. We live in a very small town, and I hoped local friends might have spotted it. My husband went to the store and looked again, and the employees felt so bad for my daughter, they got out dust mops and checked under all the shelving units, just in case it had somehow fallen beneath them.

By the time I came home from work that night, my post had been shared over 500 times. Considering I only have about 370 Facebook friends, that was pretty good. The next morning, it had been shared over 1,000 times, and I had glass blowers messaging me with offers to make my daughter a new pendant, free of charge, if we had more ashes. Around ten a.m., a local news station saw the story and asked to interview us. Neither of us were excited to do that, but we hoped it might get the attention of more locals. After all, the pendant had to be somewhere, right? Someone had to have seen it. So we went and we did it. The story aired on the 6 o’clock news, and my Facebook post continued to be shared, with comments by complete strangers who said they were looking, or were sharing in local buy/sell groups. I received notifications from people who had shared in Kentucky. Oregon. Florida. Literally across the United States. And it hadn’t even been 24 hours since the necklace had been lost.

Thursday, a local radio station reached out to my daughter for permission to share the story on their Facebook page. She agreed, and soon that story was being shared as well. So many people left kind comments, stating they were praying for us, that they understood our grief and what this necklace represented to my daughter. A glass blower in Oregon messaged me and offered to make my daughter a new bead, if we sent some ashes to her. She said she’d do it even if we found the necklace. This sort of generous spirit amazed us. So many strangers reaching out with love, with hope. It made a difference.

In the beginning, we offered a $50 reward for the safe return of the necklace, no questions asked. On Friday, I edited my post to raise the reward to $100. Later that day, my daughter received a call from a number she didn’t recognize.

“Are you Savannah, the one who lost the necklace?”

She barely dared to hope. “Yes, I am.”

“I saw the story on the radio station page and on the news and recognized it. I can bring it to you right now.”

They met in a grocery store parking lot. My daughter offered her the reward money, and the woman refused. She wished to remain anonymous.

We have this cherished necklace back, and there are hardly words to describe what that means to us.

The news  station ran a follow up story about it, and the comments from people who said they had been praying for us all week, that we had been on their minds, were simply amazing. I updated my Facebook post to thank everyone and let them know the necklace had come home, and total strangers contacted us to share their joy that we had it back.

That is love in action. That is community. That is family.

It’s a different sort of love story, but no less important.

 

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Bits and Whatnots, Everything else, Grief

Four Weeks, Nine Days

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It seems at once too slow and too fast, and feels like it’s moving through water.

Churning.

It’s been two days shy of three  months since my brother was diagnosed with stage 4 lung cancer.

It’s been four weeks and nine days since he died.

I count time like this now. Each minute, each day, each week, I remind myself I’ve made it through another one, and am strong enough to get through the next.

“Stay busy,” everyone tells me. “Keep your mind occupied.” So I do. I haven’t missed a day of work since I went back after the funeral. I’ve put out a new book, a collection of horror shorts. I’ve made five gigantic shawls and one miniature one. Most I’ve given away. It helps my anxiety to have something to do with my hands, so I haul my bag o’ yarn with me everywhere. I make dinner. I shuttle my kids around. I text friends. I try to read, but the truth is, I’m having trouble focusing. My mind drifts, and sitting still is such an uncomfortable sensation, I can barely tolerate it. I hosted Thanksgiving at my house this year. It was different and sort of quiet but we made it through. I miss watching the TV shows I used to enjoy, but I can’t seem to follow the plots enough to grasp what is happening, so I stopped watching.

My therapist says I need to give myself permission to rest. I struggle to understand how to put that into practice. I have forgotten how to let my mind be quiet. If I don’t keep it constantly filled with projects and sounds and plans, grief hits me so hard and so fast I can’t catch my breath.

At first, I feared I’d lost my words. I tried to write, but nothing came. But about  a week ago, I worked on When Knowing Comes, and I thought if I could just write one good paragraph, that would be great. It took me a while. First I typed a few words, and then a few more. Rearranged them. Deleted. Rewrote. Then all at once I had two paragraphs worth keeping. Then a solid thousand words.

I released Consumption with zero fanfare in November. I didn’t have the strength at the time to contact reviewers & bloggers. Last weekend I spent a Saturday working backwards, contacting bloggers to see if they’d be willing to review the book I surprise-released a month ago. Some were really nice about it. Most remained silent. I don’t blame them. It’s not their fault I dropped the ball. They don’t know what’s going on in my life. As far as they’re aware, I’m just another author with no regard for their time. I’m really grateful to the ones who responded, though. It means a lot.

For the most part, I’m learning to cope with the anxiety attacks. If it comes on slow, I can use the breathing exercises I’ve been taught to stave off the worst of it. Sometimes, though, they hit when I’m in the middle of a store, or driving to work. I’ll have a cart full of groceries and out of nowhere I think, “There are too many people in this store. There’s not enough air for everyone.” Even though I realize it’s illogical, the thought won’t leave. And before I know it, I’ve broken out in a sweat, my heart is hammering, my hands are shaking, and I’m stuck there in the produce aisle, hoping my ice cream doesn’t melt before I can pay and get out of the store. The week before last, my son texted me at work “lol my school is on fire.” I was so instantly panicked! I was able to reach him by phone and the kids were out in the parking lot, the fire was just in a bathroom (some kid dropped a cigarette in a trash can full of paper), and everything was under control in minutes. But I couldn’t calm back down all day. It’s days like those I realize how  much more amplified the anxiety has become. When I realize it’s in control of me instead of the other way around.

Sleep is a crapshoot. I fall asleep most nights but wake back up at two a.m. for no apparent reason at all and remain that way. Grief is a kind of exhaustion all its own, but sleeping less than three hours a night just makes it worse. I stare at nothing in the darkness and try counting backward from one hundred in an effort to trick my mind back into sleep. It never works, but I keep counting.

Counting backward. Counting days. Counting through anxiety attacks.

Marking time.

I’m still here. I keep getting up. Keep showing up. Keep working. Keep writing.

It’s been four weeks and nine days.

I’m still counting.

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Bits and Whatnots

The Vacation that Wasn’t.

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Let me tell you a story about how I’ve been living in a hotel for two weeks.

I’m not currently homeless, so don’t worry about that. I have a home, I just can’t go there.

A few weeks ago in the process of moving a file cabinet in our bedroom, we found mold. We called our insurance, who sent out a guy, who sent out a different guy, and then we heard nothing at all for several days. And then one Friday about three in the afternoon, they called and said we had to go, they had People coming out to Do Mold Removal Things.

While it’s probably typically not a hard thing to find a hotel room to stay in, our adjuster had a bit of a problem because our family is larger than what is allowed by law to stay in one room because of fire code hazards, so they had to find a place with two adjoining rooms.

And we needed a place that allowed dogs, because I’ve got two of them.

After much back and forth, the insurance found us a couple rooms at a Holiday Inn Express about a half an hour away from our home. It’s a nice enough place, don’t get me wrong, but the glamour of living in a hotel rubs off pretty quick when you’ve got six people and two dogs in an enclosed space for a long length of time. It’s not that my kids don’t love each other.

It’s that having to share beds and breathe air in the same room together for so many days in a row is turning them into zombies who crave the brains of their siblings.

The additional drive time whenever someone needs to go to school or work is draining our gas money in an insanely fast manner, and while at first it was kind of fun to eat dinner out every night, after two weeks I think we are all craving some of my own spectacular home cooked Burnt Food, or maybe just some cheap spaghetti that I make way too much of and cook way too long.

As a writer and human being who spends probably an unhealthy amount of time in my house and alone, it’s painful to be trapped in a hotel with strangers who want to start random conversations with me. I take my dogs to go out for a pee, someone strikes up some small talk. I sit in a dark corner alone in the morning for breakfast, people bring their conversations over to me and try to pull me in. It’s really a ridiculous amount of talking, to be honest. Like, in the hallways at 7:30 a.m. people smile at me and yell GOOD MORNING like they are some particularly horrible kind of monsters. One early morning as I was sitting alone, eating a biscuit and reading a Stephen King novel, some strange man in Very Ironed Clothes suddenly stuck his face in mine and yelled HAVE A NICE DAY! for no good reason at all. How am I supposed to respond to that kind of nonsense?

It’s a very clean hotel and housekeeping must come in every couple of days to make sure we haven’t trashed the place like the drunken rock stars we are, so every time I get things settled into some semblance of comfortable chaos, they come and straighten and fiddle and scrub until everything is back in order again. Not gonna lie, it’s pretty awful. I cannot create while trapped in this stark, overly organized space. And can we talk about how horrifying it is when housekeeping actually comes in to clean? The night before, my husband and I take out the trash and pick up and try to make like we are halfway decent human beings. Then when the lady does come in to clean, I sit or stand here awkwardly because it feels bizarre to have someone else cleaning up my mess but if I offer to help or give her, I don’t know, a pudding cup or a muffin or something she looks at me weird.  Today when I answered the door, the housekeeper lady asked me if I was going to let my dogs bite her.

Yesterday, the toilet backed up. I waited nearly an hour before I amped up the courage to call the front desk (because hello, it’s more talking to strangers) and then the maintenance guy came and I had to talk more to someone else I don’t know and apologize for making him do this Terrible Thing.

Not one to dwell on doom and gloom, I will admit there are perks:

There is a swimming pool.

The complimentary breakfast is delightful. I’m not certain the eggs are really eggs, but the biscuits taste like they were stolen from the kitchen at KFC, which is not an entirely impossible notion, as there’s a KFC across the parking lot here.

I haven’t had to wash dishes in two weeks.

But I find the idea that I don’t know when I can go home makes me feel really stressed. People keep telling me to treat this like a vacation, but I think those people have likely never been abruptly stuffed into a hotel room with six people and two dogs for an extended period of time.

Last week, my son got really sick and had to spend some time in the ER. He’s doing better now, but I felt I had to ask the universe what bad thing was coming next, because I think we all know that Bad Things come in threes and I like to be prepared.

That was right about when we found out my daughter’s cosmetology school closed, three weeks into her first semester, with no warning. Just a post on the school’s Facebook page stating they were very sorry, don’t come to class tomorrow, they were closing down all 79 campuses. Of course, she’s distraught and we are left trying to find her a new school and deal with her loans and in general, it’s an entirely unpleasant experience.

BUT THEN

It got worse.

When my husband went to pick up dinner last night, we found out that Little Caesar’s is discontinuing their cream cheese dip.

I know. I KNOW. It’s okay, I cried a little bit, too.

I have been working, though. In addition to my regular freelance writing, I’ve gotten a few thousand more words on my current novel, and the other day fiddled around a little bit with a New Shiny Idea, which seasoned writers advise we shouldn’t do when we are writing a novel already, but I don’t understand how to get the voices out of my head if I don’t get them out on the page.

We had a meeting with the contractor a couple of days ago, who cheerfully announced it would likely be another two weeks before we can go home, and that’s barring any problems.

I’m beginning to feel a bit like Bilbo Baggins. This little adventure has been nice and all, but I really just want to go home where I have all my books and my yarn and mountains of dirty dishes in the sink.

By the way, does anybody have a pair of ruby slippers I could borrow?

There’s no place like home, there’s no place like home, there’s…

See what this nightmare has done to me? I’m already mixing up fictional characters. I’ll be utterly daft by the time I get to go home.

Probably not the worst things that could happen. I hear all the best writers have lost their minds.

 

Bits and Whatnots, Everything else

Kiss of Pavement

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Last year, you might recall we took the kids camping for a few weeks and ended up living through our own version of A Series of Unfortunate Events. There was a terrible sunburn for me, weeks of miserable hives (also for me), and among other things, a myriad of parts that broke on our trailer. We also found a leak that invited bugs under the floor in one area, and had to cut that piece of linoleum out. Given that, it may seem bizarre we’ve decided to do it again, but we are.

I may be mildly (okay, horrifically) bad luck prone, and my sense of coordination has never been the sort that made athletics a smart idea, but still, we were excited to pack up and travel that ten minutes from home to the campground. Campfire pizza pies and s’mores called to us. Thoughts of swimming, kayaking, and family picnics drew us in. Ever optimistic, I took precautions so I wouldn’t burn and break out in full body hives like the freak of nature that I am. SPF 70 is surprisingly difficult to find, but I hunted until we located a couple bottles of it. I have a thin, silky jacket to help protect me from the sun. Picked up a couple large and ridiculously gaudy sun hats. Two different types of antihistamines.

We brought only our oldest son with us to help set up, since we were close enough to home to run back once we were finished. Found a nice site with nothing but woods behind us, which is more peaceful than when your rig is surround by others, and what we prefer when camping. Lady Luck, it appeared, was on our side. I knew this trip was going to be great. I even had a new swimsuit I was looking forward to trying out. After we set up the trailer, we went home to finish getting the kids’ things together, and as they were all complaining about their imminent death by starvation, we ordered a couple of pizzas, ate at the house, then left the kids and dogs home while we ran up to buy some groceries.

We’d gotten a rather late start that first day, so we didn’t make it to the grocery store until around 10 p.m., but we were full of adrenaline and happily making plans for cooking out over the weekend. Everything was working out perfectly for us. Even the weather forecast was on our side.

Nothing could possibly go wrong.

Right?

We were back to our house by 11, and it was pitch dark outside. We had purchased some extra food to leave at the house, and our plan was to just drop that off, pick up the kids and the dogs, and get back to the trailer. I hopped out of the car, thought my husband was likely getting exhausted from his long day of work, then setting up the campsite, then grocery shopping, so I decided I’d help him carry in the few groceries to the house.

That’s where it all went wrong.

I turned, rounded the driver’s side of the Yukon, felt a horrendous hot pain going from my right big toe and straight up my leg.

Next thing I knew, I was airborne.

I had forgotten about that part of our driveway that’s got an uneven spot, where some of the concrete has settled down lower than the rest. In the darkness, I didn’t see it.

I struck that part with my right foot, and felt something crack. My first thought was that I had broken my big toe. I felt some kind of crack in the center of it.

My second thought was that I was about to land face first on the pavement.

There was nothing for me to grab on to so I could break my fall. I was too far away from the Yukon to catch hold of anything. My daughter had her back to me and was walking toward the house. My husband was behind the vehicle. No help from any direction.

I landed with a thud on the concrete. I felt the skin rip off my knee and the palm of my left hand.

A single inelegant and rather grunty-sounding word escaped my lips. “Fuuuuuuuuuuuuuuuuuuuuuuck.”

My husband hurriedly came around the corner of the vehicle. He stared at me for a moment, then asked, “What are you doing?

(Kissing the pavement, it looked lonely) “Um, I fell.”

“You fell? Over what?”

I begin laughing like a hyena with a dime bag who has just gotten busted by the cops. “Um… think I broke my toe.”

He helped me up and into the house. Once we were in the light, I caught a visual of my mangled right big toe and immediately wished I hadn’t. I plunked down into the part of the couch that has the recliner in it, and put the leg rest up. Ow, ow, ow, ow. The kids crowded around me, worried.

My left hand and knee were scraped up pretty good and my knee was good and bloody. Those were things that hurt, but not terribly. My toe, however, was in an awful lot of pain. I was thinking back to times I have broken other toes, attempting to remember the exact feeling or what the signs and symptoms of a broken toe might be. I closed my eyes, trying to think, but doing so was difficult because, A: jolts of hot pain were biting up the nerves in my legs, causing me to shake, and 2: three of my kids were crowded around me, shouting at me things I guess I have said or maybe yelled at them over the years in the aftermath of an injury.

Kid 1: “I think we need to take her to the urgent care clinic.”

Kid 4: (patting my shoulder frantically) “It’s okay, it’s okay, it’s okay, it’s okay! It’s okay, it’s okay, it’s okay, everything’s okay!”

Kid 3: (plunks his hand down on my thigh, affects a deep and manly voice) “Here, Mom, squeeze my hand. Put your pain into it. I can take it. Squeeze as hard as you can.”

Kid 1: “Get a wash cloth! Somebody get a wash cloth! We need to clean her up!”

Kid 4: “Does anybody know what kind of music she likes? Let’s put on Pandora! Mom, what Pandora do you like?”

Kid 3: “That’s stupid. Shut up. She doesn’t need music right now!”

Kid 4: “MUSIC IS VERY CALMING, I READ ABOUT IT! I’M NOT STUPID!”

Kid 1: “I don’t like the way she’s shaking. I think she’s going into shock.”

Husband: “Just go run her foot under some water, then dump peroxide on it. Kills the germs.”

Kid 1: “She can’t walk! We need to take her to a clinic!”

Me: “Clinics are closed, and I’m not going to ER for this. Just give me a minute here.”

Kid 4: “Parts of her toe are hanging off. Does she know that?”

Kid 3: “Squeeze my hand, Mom. Somebody get her some water! We need water over here!”

Kid 1: “She’s still shaking. I’m worried. Mom? Mom, can you hear me? We need to take her somewhere.”

Husband: “I don’t know. You wanna go somewhere? Your toe is pretty messed up. Needs to be cleaned… and uh, I can’t do that. Um, I think you ripped the nail off.”

Kid 4: (frantically patting my shoulder, my head, my leg) “It’s okay, it’s okay, it’s okay.”

Kid 3: “Here, Mom. I got you some water. Can you sip it? That’s good, that’s good. I got her to take some water!”

Kid 1: “Could she be having a seizure? Did she hit her head?”

Me: “I’m not having a seizure. I just need a minute to calm back down.”

Kid 1: “Okay, I’m going to help you clean up your knee. There’s a lot of blood, but I’ll be very gentle, okay?”

Kid 3: “It’s gonna hurt, Mom. Go ahead, squeeze my hand hard, I can take it.”

Kid 1: “Somebody get a bowl of water to put her foot in. There could be dirt up under that nail.”

Husband: (brings enormous salad bowl full of water)

Me: (gingerly dips foot into water while trying not to look)

*phone rings*

*husband answers*

Apparently kid 2 and her boyfriend are sitting in the dark at the campground getting hassled by security because we thought we would be right over there, but we evidently aren’t, so they are sitting there at midnight with no key to the trailer and no membership card to prove they are actually supposed to be there.

Husband: “Just tell them to call my cell phone then! Oh my God! Why can’t anything ever just go right!”

Kid 4: “Cool. Look at all the blood in the bowl!”

Kid 3: “Shut UP! Don’t tell her there’s blood. It’s okay Mom. There’s hardly no blood. It’s fine, it’s fine.”

Husband: “What bowl do we need for the party tomorrow? For you to take that dessert in?”

Me: “Uh, the blue one. With the lid.”

Kid 1: “Mom can’t talk about making dessert right now! She’s INJURED!”

Kid 4: “Can I play Pokemon Go at the campground?”

Kid 3: “Step back, let me take care of this. I was a Boy Scout. I have first aid training!”

Someone has brought Band-aids and some gauze, so we dry off the mangled toe and hurriedly cover the mess. Once I don’t have to look at it, the pain begins to diminish. The shaking settles down. I’m running through a list in my mind of what medication I have on hand that might help. All I can think of is Motrin and some of the heavy-duty antihistamines, both back at the trailer.

We have three vehicles to get back to the campground, so I know I have to drive. After I get myself composed and my husband has gotten the rest of the stuff we need packed up, I hobble back out to my vehicle. We form a little caravan as we drive through the night. It takes me a little longer to get to the campground than usual, but finally we make it.

Eventually I sleep. I dream of meeting new people and all of them are missing a hand or a foot.

The next day was busy. We had a party to get to, and some shopping that still needed done. I clutched the cart through Wally World, thinking gratefully of the evening, when I could sit in my lawn chair with my throbbing foot up and work on a blanket I’m crocheting. My husband says, “Let’s go look at the bikes.”

Bikes. Sure.

Over the winter, we had been talking about buying new bikes for us. The last time we bought new bikes for ourselves, our 20-year-old daughter was 3 months old.

Sure, I said. Let’s go. I was thinking we could look quick before we left. What could it hurt? I was watching the time, though. I had promised the party host I would come back and help clean up.

Leaning against the cart, I shuffled around the corner to the bike aisle.

And that’s when I saw it.

The most glorious bike that ever happened.

Turquoise and bright yellow, with a matching basket on the front (obviousy to put my yorkie in), it said, “Margaritaville” down the middle bar, and had a small parrot on the handle that squeaked when pushed.

The seat was flowered.

“This one,” I said. “I want it.”

“Are you sure?” he asked, wary. “Are you gonna fall off it and get hurt again?”

“No, no. I’m fine. Get this one. It’s beautiful.”

And it is.

I love it.

But I have to admit, with my history of poor luck and general clumsiness, I was a little worried when I took it for my first ride.

So far, so good.

And I don’t even need that big toe to balance on my bike.

I hope the rest of this trip is entirely uneventful.

Is there some sort of “Uneventful, boring trip” dance we could do, you know, like a rain dance, to keep things smooth and chill for a while? I mean, obviously I can’t do the dance, I’ve got a mangled big toe. But surely someone could be willing. My youngest son seems to suddenly have more energy than he knows what to do with.

If I withheld Pokemon  Go from him for a while, I could probably bribe him to do it.

If my luck suddenly turns around, you’ll know I’ve got an adolescent I’m forcing to dance for me like a little marionette, taunting him with promises of catching a Snorlax if he just dances for me one more time.